Isabella and Marcus lost their lives to a little-known brain cancer called Diffuse Intrinsic Pontine Glioma (DIPG). DIPG arises in the brainstem, most frequently in children under the age of 12 years and offers no prospect of long-term survival. Most children die within a year of diagnosis.
Brain cancer kills more children than any other disease in Australia and DIPG carries the worst prognosis. The only approved treatment for DIPG and other Diffuse Midline Gliomas is radiotherapy, which temporarily reduces symptoms, but not eradication of the tumour. Change can only occur through research, which has improved the prognosis of many other children’s cancers.
Isabella’s and Marcus’ families were brought together by their tragedies. They are like-minded in their pursuit to develop treatments that extend and improve the quality of life for children diagnosed with brain cancer and ultimately to find a cure.
Solve the puzzle that is brain cancer by funding research, scientific meetings and clinical trials. Our focus is DIPG, a devastating and incurable disease of children and young adults.
To make DIPG and other diffuse midline glioma's, treatable.