Isabella and Marcus lost their lives to a little known brain cancer called Diffuse Intrinsic Pontine Glioma (DIPG). This cancer occurs in the brainstem, most frequently in children under the age of 12 years and offers no prospect of long term survival. Most children die within a year of diagnosis.
Research has improved the prognosis of many children’s cancers but there has been no progress in the treatment of DIPG and other Diffuse Midline Glioma's. The only treatment available is radiotherapy, which temporarily reduces symptoms. Brain cancer now kills more children than any other disease in Australia and DIPG is the most dangerous.
Isabella’s and Marcus’ families were brought together by their tragedies. They are like-minded in their pursuit to extend and improve the quality of life for children diagnosed with brain cancer and ultimately to find a cure.
Enable scientists to solve the puzzle that is brain cancer by funding research, scientific meetings and clinical trials. Our focus is DIPG, a devastating and incurable disease of children and young adults.
To make DIPG and other diffuse diffuse midline glioma's, treatable.