Isabella and Marcus lost their lives to a little known brain cancer called Diffuse Intrinsic Pontine Glioma (DIPG). This cancer occurs in the brainstem, most frequently in children under the age of 12 years and offers no prospect of long term survival. Most children die within a year of diagnosis.
Research has improved the prognosis of many children’s cancers but there has been no progress in the treatment of DIPG and other Diffuse Midline Glioma's in the last 30 years. The only treatment available is radiotherapy, which temporarily reduces symptoms. Brain cancer now kills more children than any other disease in Australia and DIPG is the most dangerous.
Isabella’s and Marcus’ families were brought together by their tragedies. They are like-minded in their pursuit to extend and improve the quality of life for children diagnosed with brainstem tumours and ultimately to find a cure.
We work closely with researchers in Australia to develop treatments for children with brain cancer. Our focus is DIPG, which is an incurable, devastating disease. We fund the basic research and research infrastructure and support meetings that bring scientists together to share their latest insights. We also fund clinical trials to bring promising new therapies to the clinic for families of affected children. We are increasing the profile of brain cancer and lobbying authorities so that brain cancer becomes a priority for government support.
To make paediatric diffuse midline glioma's, like DIPG, treatable.